Perhaps I am one of the few that overlooked the fact that health research rarely included women. While that finally changed in 1993, knowledge about drugs and other devises for women still lag behind men. One explanation for that neglect was relevant to the exposure of drugs and other medical care. As a result, understanding how best to treat women, and especially women of color, lagged behind. Failure to study medications and other interventions in a broad sampling has contributed to women expressing adverse effects from medications at twice the rate of men. That is finally beginning to improve.
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| Art by Lyn Fenwick |
However, thinking about the means by which research has been done lead me to disturbing history. During WWII Nazi's conducted human experiments on people. The Tuskegee Syphilis Study from 1932 to 1972, by the U.S. Public Health Service, misrepresented what they were doing. Thank goodness that has been stopped by The Declaration of Helsinki which serves as the global cornerstone for human research ethics. In addition, there are Institute Review Boards and independent review Committees and strict Information Laws insuring informed full understanding.
My research led me to the question of the need for voluntary individuals that are willing to participate in clinical trials. Their willingness to explain why they would participate surprised me. A test was done to research that very issue. The analysis included six possible reasons for potential motivation: Improvement of one's own health, Access to innovative therapy, Helping future patients, Encouragement from loved ones, a Physician's recommendation, and Contribution to the development of medical knowledge. From some of their responses I found that the most important influence was the Physician's recommendation, however, the desire to contribute to the development of medical knowledge was a high intention. Ironically, the test also found that the lack of support from family was the lowest response.
After doing all the research historically, I could not ignore that today Americans are facing a reversal in protecting the health of working families. However, it is not only impacting the poor. Access to medical care is impacting hospitals, clinics, and nursing homes, many of which have closed. The impact is staggering.
This blog began about the delay in medical research for women, but what I discovered in my research is that we are face is bigger issues. Women and minorities may still be further behind because attention to them was delayed. But now even larger issues about health and care exist. I fear that broader problems are distracting the efforts to expand research or simply maintain the medical care we had before. Too many distractions seem to be neglecting important things.
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